Glioblastoma
48
Dana-Farber Cancer Institute, MA
Dr. Rose Du - Brigham & Women’s Hospital, MA
Dr. David Reardon - Dana-Farber Cancer Institute, MA
Yes, the clinical trial drug (XL765) was administered during both radiation treatments & the maintenance cycles. At the end of the clinical trial, I chose to discontinue the Temozolomide, but kept taking the trial drug for another 5+ years until the manufacturer stopped the trial as it was deemed ineffective in GBMs as well as several other solid tumor cancers.
In August of 2011, after a 100% complete resection of my tumor (109cc) in my left occipital lobe, I completed 30 treatments of radiation (SRT) combined with Temozolimide & a phase 1 clinical trial drug (XL765). Post radiation, I had a 4 week rest phase, and then began 13 cycles of Temozolomide & the clinical trial drug. In October of 2021, we discovered a grade 2 glioma in my right occipital lobe. Another craniotomy was preformed by Dr. Du, again, & successfully removed it in it’s entirety. Four weeks later, an MRI confirmed that the tumor had already grown back. This time, I completed 15 rounds of radiation combined with Temozolomide. As of July, 2022, I have now completed 6 maintenance cycles (5/23) of Temozolomide, with 6 more remaining. We have also added infusions of Keytruda every 3 weeks.
Temozolimide
Therapy (saw a traditional therapist)
Cancer taught me what is really important. I've learn to cherish moments, create memories and celebrate milestones. I've learned that everybody dies, not everyone lives.
Men’s multivitamin, Turmeric, & D3
“We were not put on this earth for ourselves, we were put here to help others.” -Paul Bayne, from the award-winning documentary "Living with the Odds," 2020.
Stay positive, advocate for yourself, and graciously accept help from family, friends, & sometimes complete strangers.
