Diagnosis & Treatment

Medical Center
1) National Brain Cancer Center - Bethesda, MD 2) Frederick Medical - Frederick, MD 3) Duke Brain Center - Durham, NC 4) BayHealth Center, Dover DE
Clinical Trials
Yes, Carboplatin, in 2011 at National Cancer Institute, Study Number: 09-C-0222.
Medical Treatment
Details of Treatment
Chemotherapy programs: first was 6 months, second was 8 months, third was 6 months, fourth 6 months. Two Surgeries. Radiation: daily treatment for 6 weeks.
Medication During Treatment
Temodar, Carboplatin
Alternative Therapies During Treatment
No items found.
Cancer forced me to look at reality and my time available to do what I want to do.
Vitamin D
WHAt helped me during treatment
Favorite Quote
Advice for Others
Be positive!

My Story

From day 1, October 2009, to today is a very long time - and that is the best news available!  

My first surgery was October 2009 and they had to leave approximately 40% of original tumor is left in my brain. In December 2010 I had a second surgery, they cut open the exact same places as first one and were able to remove a new small tumor.  I was accepted at the National Institutes of Health Clinical Center (NIH) in 2009, they were all wonderful there - they are the reason I am still alive.  However in 2014 the Brain Cancer Department closed, so I "interviewed" three other choices, and I was accepted at Duke Cancer Center in North Carolina, where several of the best Brain Oncologists on the east coast are located.

I was off all treatment from 11/11/11 to 2020.  11/11/11 I was receiving the Carboplatin treatment at National Institutes of Health Clinical Center and was determined my body was done with this chemo treatment. I decided to stay off all treatments and have monthly MRIs.  I had monthly MRIs for almost 2 years then they were spaced out 2 months, then 3 months, then 6 months.  I didn't have to do any treatments until 2020! I went on the lightest version of Temodar in 2020 due to a very small growth showing.  I did this for 6 months with no problems.  Then December of 2021 another small growth was showing, so I went back on lightest version of Temodar, and the new tumor has decreased in size!

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